Lucy is doing well. She has recovered from her surgery and her digestive system is working as it should. She is finally feeding by mouth without IV assistance. The have removed all tubes except the g-tube, which will need to remain for at least 4 more weeks. She gets to come home tomorrow!! We are so excited to start bonding with her in a normal setting.
It’s funny how we prepare ourselves for what we expect life to be and then, when we are dealt a different hand, we realize none of this is in our control. It reminds me of memories I have with certain friends. On more than one occasion I have gotten lost when on an adventure. We planned to go to place A and instead spent time driving around for hours (before the days of GPS). Those times were awesome. We would laugh and share stories. The more lost we were, the more fun we seemed to have. The true enjoyment was because of the bond between loved ones, not the place we set out for. Life is very much full of unexpected twists and turns and you may even get lost along the way, but God has placed amazing people to love along the way. I have stopped focusing on where I think we should be or go and switched my focus to those I get the privilege to love along the way.
Lucy is such an amazingly special little girl and I am so honored that God would bless me with the opportunity to be her grandmother. Let the adventures began!
Her thyroid is still a bit elevated so an endocrinologist will follow up with that.
Her left ear failed the hearing test. They will follow up in a few months.
She has a small hole in her heart. Please pray that as she grows, the hole will close.